A Look at the Decisions Hispanic Families Make After the Diagnosis of
Deafness
By Annie Steinberg, M.D., Lisa
Bain, M.A., Yuelin Li, Ph.D.,
Louise Montoya, M.A., N.C.C., C.S.C., Vivian Ruperto
The Children's Seashore House at the Children's Hospital of Philadelphia/March
2002
Full paper in PDF format (111
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Versión en Español
This document was developed as part of KidsWorld
Deaf Net (KWDN), a national communication network sponsored by the Laurent
Clerc National Deaf Education Center at Gallaudet
University with support from the AT&T
Foundation.
Abstract
This document is the result of a study
that examined the decision-making process for Hispanic families
living in the United States who have a child with a hearing loss.
Twenty-nine families in four different geographical areas shared
their experiences in learning about their child's disability, searching
for appropriate interventions, and making choices regarding communication
and education. The authors explored the impact of language, culture,
minority status, and access to information and services on the decision-making
process. They offer insightful implications for service providers.
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